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Coeliac Disease

PostPosted: Sun Dec 12, 2010 3:50 pm
by Victors Mate
After being told for many years she suffered from IBS tests have confirmed it is not IBS that my daughter Nicky suffers from but Coeliac Disease. As my granddaughter Amy was also told she suffers from IBS it is extremely likely the Doctor was wrong in her case as well she is in the process of getting screened.
Although they are both pleased to be getting the associated problems sorted out at last we would all like to know what took so long. It was only as a result of Gina’s leukaemia that Nicky insisted on a blood test that brought it to light.
Anyone else here suffer from Coeliac Disease? Will be grateful for any advice.

PostPosted: Sun Dec 12, 2010 4:59 pm
by dejavou
I've no experience of it VM, but I hope with the correct diagnosis both Nicky and Amy will be feeling better very quickly

PostPosted: Sun Dec 12, 2010 6:30 pm
by Rowan
No experience of this one Tony but will ask around to see if anybody has any info.

PostPosted: Sun Dec 12, 2010 8:44 pm
by Maywalk
I have looked in my medical book VM and tried to print off what it says about this disease. Its rather a thick book so had a bit of trouble trying to print the part off but I hope it helps.

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PostPosted: Sun Dec 12, 2010 9:18 pm
by Victors Mate
Thanks folks we have researched Gluten free products and recipes what we are looking for is information from sufferers who have personal experience of this disease. Sorry I should have made my question clearer, my fault.

PostPosted: Sun Dec 12, 2010 9:43 pm
by Maywalk
There are quite a few forums about this VM.
Might be worth having a look at them because there are folk on them who have this setback.
I just typed in Coeliac forums.

PostPosted: Sun Dec 12, 2010 9:54 pm
by Victors Mate
Thanks Maisie.

PostPosted: Sun Dec 12, 2010 11:06 pm
by Lacemaker
Very sorry to hear this, VM.

PostPosted: Mon Dec 13, 2010 11:17 pm
by Victors Mate
Thanks Hazel. Providing there are no further problems both Nicky and Amy are pleased that they can now make progress in improving their health. Amy Googled coeliac disease and linked it to OCD and found that once the Gluten is eliminated there is an excellent chance of her OCD rituals losing at least some of their grip. :please:

You would not believe how many things I have crossed.

PostPosted: Tue Dec 14, 2010 12:14 am
by Rowan
Here's hoping then!!

PostPosted: Tue Dec 14, 2010 8:23 am
by Vince
Sorry to hear about the problems with Coeliac Disease , Unfortunately I don't have anything to contribute but I hope all will become better with the new year.

PostPosted: Tue Dec 14, 2010 2:40 pm
by Lacemaker
It's amazing how these conditions can be linked - makes you wonder about the effect of food additives, etc. doesn't it ? :dunno: